We, Alex and Mahsa, are both ambassadors of the IgG4-RD Connect, a first-of-its-kind, insight-generating online community
We invite you to join this research for good patient support group and platform created by TREND Community, and approved by an Institutional Review Board (IRB).
IgG4-RD Connect is designed and aims to:
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Connect us through our conversations
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Provide the patient community with resources
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Use AI for unidentified* social listening, to connect the trends and patterns between the patients' organ involvement, symptoms, treatments, and lived experiences.
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Help the medical community by feeding patient-generated insights through all medical facilities globally.
IgG4-RD Connect: Together, we the patient community will advance and push for progress within the medical community.
* Unidentified - patients' identities are fully protected and not identified.
Benefits
Why Join?
IgG4-RD Connect is about connection, support, and research for good. When you join, you will have access to shared journeys, mental health support, peer support sessions, story-telling workshops, webinars with leading experts, and more. Through social discussions and listening, you will have a voice in the insights that get published. Every patient's journey, struggles and success are important.
Our Partners
TREND Community, a certified B-corporation, is a data health analytics company that turns the conversations of rare, chronic, and emerging disease patients and communities into actionable insights.
Through unidentified social listening, Trend Community has been able to successfully provide insights back to the medical community which highlight trends and patterns caught between patients' experiences, symptoms, and treatments.
This helps the patient community immensely as it helps push for advancements in therapeutics.
Every voice matters. No two people living with a chronic disease experience it the same way. That is why YOUR voice is valuable.
Research for good. This is a commitment to conducting research that is ethical, patient-centered, inclusive, impactful, collaborative, and continually evolving to meet the needs of the communities we serve. It is about making a positive difference in the lives of patients and their families through responsible and meaningful research practices.
Patient-based evidence. Consideration and inclusion of patient-based evidence is mandatory prior to FDA approval of a new drug, This means that your contributions to this community can help make clinically-proven therapies available to your community as quickly as possible.
Privacy
Igg4-Rd Connect is IRB-compliant. This means that the community and platform has undergone the necessary ethical review process of the research protocol, informed consent process, and data collection procedures to ensure the protection of your rights, identity, and well-being.