You are invited to join IgG4-RD Connect, a first-of-its-kind, insight-generating online community. The community is hosted through Discord and managed by TREND Community.
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IgG4-RD Connect aims to:​
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Connect the IgG4-RD community through discussions.
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Facilitate the sharing of patient community resources.
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Use AI for de-identified* social listening to connect the trends and patterns between the patients' organ involvement, symptoms, treatments, and lived experiences.
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Help advance research through community-generated insights. ​
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* De-identified - patients' identities are fully protected and not identified.
Benefits
Why Join?
IgG4-RD Connect is about connection, support, and research for good. When you join, you will have access to shared journeys, mental health support, peer support sessions, story-telling workshops, webinars with leading experts, and more. Through social discussions and listening, you will have a voice in the insights that get published. Every patient's journey, struggles and success are important.
Our Partners
TREND Community, a certified B-corporation, is a data health analytics company that turns the conversations of rare, chronic, and emerging disease patients and communities into actionable insights.
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Through unidentified social listening, Trend Community has been able to successfully provide insights back to the medical community which highlight trends and patterns caught between patients' experiences, symptoms, and treatments.
This helps the patient community immensely as it helps push for advancements in therapeutics.
Every voice matters. No two people living with a chronic disease experience it the same way. That is why YOUR voice is valuable.
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Research for good. This is a commitment to conducting research that is ethical, patient-centered, inclusive, impactful, collaborative, and continually evolving to meet the needs of the communities we serve. It is about making a positive difference in the lives of patients and their families through responsible and meaningful research practices.
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Patient-based evidence. Consideration and inclusion of patient-based evidence is mandatory prior to FDA approval of a new drug, This means that your contributions to this community can help make clinically-proven therapies available to your community as quickly as possible.​
Privacy
Igg4-Rd Connect is IRB-compliant. This means that the community and platform has undergone the necessary ethical review process of the research protocol, informed consent process, and data collection procedures to ensure the protection of your rights, identity, and well-being.